TamraHayden performs Black is the Color (of My True Love’s Hair) during The Jesse Terry and Friends Concert at The Winery at St. George in Mohegan Lake NY, July 30th, 2014
Inspiration. Lately, it seems like it’s become a four-letter word in the disability community. Phrases like “inspiration porn” get tossed around regularly and the definition seems to be constantly changing, depending on who you ask. But what is inspiration porn, really? Is it possible to have inspirational portrayals of disability that are positive? The term…
Promising young composers’ musical about Rachel Carson reveals her triumphs, struggles, and the love of a woman who stood by her through it all The primary reason I came to New York City this summer was to see Rachel: The Musical, currently being produced as part of the Fresh Fruit Festival at the Wild…
This isn’t a political blog. But the personal is political, and that’s especially true for me and many other people with disabilities. I didn’t sleep at all the night of the election, and I’ve been struggling to think and function ever since that night. I’m more afraid for my future than I’ve ever been before….
My recent road trip to California ended in disaster. One of the caregivers I was traveling with became irrational and abusive, to the point where I had to arrange my own rescue for my safety and especially that of Aria. Sometime in the future, I may write more about it, but this is not that…
I am a disability travel blogger who takes road trips all over the country, and as such having a reliable wheelchair accessible van is essential for me. In 2019 my father and I were sold a van with a defective VMI Ricon Slide-Away lift by the Mobility Van Store of Lakeland, Florida. It has cost…
When I was a little girl growing up with cerebral palsy, I had beautiful long hair down to my waist. But when I was about 7 years old, my mom said I had to cut it, because it would be “easier for me and other people to take care of.” I was furious. I loved…
