If you are a person with a disability or a personal care attendant, direct support worker, or other caregiver, you may have heard about the looming menace of electronic visit verification. Due to lobbying from medical technology companies, notably Sandata Technologies, the 21st Century Cures Act of 2016 added a requirement that Medicaid funded personal care attendant…
Twenty years ago today, September 21, 1999, I lost my mother, Kristin Willison. She was only 55 years old and had battled cancer multiple times throughout her life. My mom was the strongest person I’ve ever known. I strive every day to live up to the example she set. She was a tireless fighter in…
If you have a disability, you may be in need of home care services, a Medicaid personal care attendant to help you with everyday tasks such as dressing, bathing, cooking and cleaning. If you have a child with significant medical needs or a developmental disability, you may be seeking help to care for them while…
As a person with a disability who is living independently, traveling and thriving thanks to Medicaid consumer-directed home care services, many people ask me, “What Medicaid personal care attendant programs are available in my state?” Unfortunately, this information isn’t always easy to find, so I’ve compiled a list of national and state resources on Medicaid waiver…
If you have a disability and you’re traveling to New York City, you may be considering seeing a Broadway show and wondering how to get wheelchair accessible Broadway tickets. For many people, attending a musical or play is one of the highlights of a New York City vacation. If you’ve read other disability travel guides here…
If you’re trying to get away from the winter cold, relax on the beach over spring break or bask in the summer sun, Sarasota, Florida is the perfect wheelchair accessible vacation destination. Whether you have a disability and use a wheelchair, scooter or other mobility aid, or you live with chronic pain and fatigue, Sarasota…
When you or a loved one has a disability or is aging, you may need to hire a caregiver. A caregiver can be a family member, personal care attendant, home health aide, nurse, school aide or CNA. No matter what their title, they have an essential and trusted role — to assist with someone’s personal…
A few days ago, I stood on my own two feet for the first time in 10 years. I could feel the blood flowing to my legs, my head spinning slightly from my body being in a position it wasn’t accustomed to experiencing. My lungs filled deeply with air; I could feel all my organs…
The New York Times recently published an article entitled Six Simple Tips for Smooth Travel With a Disability. This article has been roundly criticized by a number of people in the disability community, and rightly so. Did they even contact any frequent travelers with disabilities to get their input? As a travel blogger who does my…
Follow my blog with Bloglovin People always praise the importance of self-care, but the experience is different for those with disabilities. According to endometriosis survivor Hannah Daisy, even the simplest of things can be a barrier. “Facing tasks like making the bed, washing the dishes, and doing the laundry can feel especially onerous [for someone…
